Monday, February 22, 2016

My mind is spinning. I am wanting to write

I have so many things on my mind these days as I approach the later part of my Taxol chemo treatments and head to radiation soon. 

My mom always says I need to write a book. So I will journal some of the facts about my Breast Cancer case. I want to log these facts for my family and maybe friends to pass on for knowledge and prevention of breast cancer and other cancers related to the BRCA 2 mutation I carry. 

1) insurance sucks when it comes to members of family needing to be BRCA tested. Yes, my siblings can be tested, but my Aunts and uncles (except one that had BC, yes a male with BC) can't get insurance to cover their BRCA testing until their sibling is tested. My dad obviously had BRCA because I have it, but since he is deceased and was never tested, my Aunts and Uncles can't be tested because I am not their direct descendant. They will have to wait until my uncle, that had BC,  is tested and if he is negative will they deny testing them? 

Their paternal Aunt, My Great Aunt was one of 11 children and was BRCA2 +. 1 male, 10 females and if those 10 females 6 of them died of one or more cancers related to BRCA2 cancers. Uterine or Ovarian and or Breast.  My Great Grandpa was obviously a BRCA 2 mutation carrier.... 

Don't you think that is enough history of cancers to get insurance to cover BRCA tests without a direct sibling or parent having been tested, but passed away?! 



Monday, February 1, 2016

Port, oh port, why must we fight?

Reminder to self, bring a pain pill with me to chemo. Port is hurting bad. Silly dog jumped on me the other day and directly hit me in my port so apparently my tissue around the port is swollen.  Waiting on pain pill in order to calm this port and tissue down to get chemo started. 

I shed a few years, but I will get through this. 

Heading to have a dye study done on my port now.